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The Loss Affect – Guest Blogger Angie Bailey of Expectations Revised

Much like an infomercial for the latest must-have miracle diet pills, I have had a very distinct Before and After metamorphosis. The change in my appearance isn’t drastic (unless you count the extra pounds and addition of stretch marks), but I’ve transformed into a brand new person. I can hardly recognize the woman naively smiling in my Before picture.

When looking back on my life I cut the timeline into two major halves, Before Aiden and After Aiden. The Before version of myself is young, carefree, and wet behind the ears; and After Angie is empathetic, mature, and wise beyond her young age of 28. My heart has changed; it’s been split wide open and has felt both the purest of joys and deepest despair. I’ve forced myself to do an honest inventory of the broken relationships from my life which ended on trivial grounds and mended friendships lost due to petty differences.  I’ve re-evaluated my priorities and let go of selfish grudges. In the past 18 months I’ve learned more about myself than I ever could have had Aiden not died, I’m forever grateful for the strength and courage he has given me.

Losing Aiden has also given me a chance to see the people in my life for who they truly are. I’ve been disappointed more times than I’d wish to count, but even more, I’ve been pleasantly surprised. I was, and still am, greatly supported by my closest family and friends. They are the ones I can speak to candidly when I’m feeling sad or angry while having an “Aiden moment,” and also have helped my husband and me remember and celebrate Aiden on holidays and his first birthday. They allow me to speak his name freely without shame. I love them because they love him.

And then there are the people on the opposite side of the spectrum. I’m not sure which hurts worse, when someone you’ve always admired claims Aiden never existed or an old friend who completely disappeared after Aiden died and has yet to come out of hiding. Being shown an honest look at people you thought you knew so well can either break your heart or heal it.

After Angie is a better person because he lived, and will never quite feel complete because he died.

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Join the Conversation

Have you changed after your loss(es)? If so, how? How have your friends and family reacted to your loss(es)? Were you surprised by their reactions?


About the author

Angie Bailey lives in Huntington Beach, CA with her husband Kevin and 3 month old son, “Little Kevie.” Their first son, Aiden Kenneth, was born still on August 13, 2010, 37 weeks into her picture perfect pregnancy. No cause of death was ever found. She writes about life and parenting after loss at Expectations Revised.

Little Orso Dedicates Month of February to Infant Loss

During the month of February, our friend at Little Orso will feature Infant loss.  Every day she will focus on a different infant loss business or charity.  We are looking forward to seeing the businesses and charities we know and love, and making new connections in the Loss Community, through her blog.  She kicks off the month featuring a new charity that just started in December 2011, Lil Angel Hankies.

Thank you, Little Orso, for your dedication and great work to keep us informed!

Working together to create memory boxes

Recently I was contacted by Rebecca Wright, whose sister Erin Brinkerhoff had lost a baby. When Erin left the hospital after the delivery of her son Nathan, who died at nearly 19 weeks due to multicystic dysplastic kidneys, she left the hospital with a make-shift memory box. Unfortunately the hospital had run out. Upon seeing her sister’s make-shift memory box, Rebecca immediately went out to local craft stores and bought all the boxes she could find. Then she lovingly decorated them. Rebecca says, “My sister was already devastated and while she did not care what her sons belongings were in, I did.”

Erin says she found out that her sister had been making boxes when one day she went to her house and saw 50 lids lying out to dry. “I got really emotional and realized that there wasn’t anything I could do about losing Nathan, but there was something I could do,” says Erin. “Helping my sister with decorating boxes has helped me heal–I can remember him while I’m making something beautiful.” Erin said her sister enlisted the help of friends, family and church members to help decorate the 200 boxes she purchased. She has spent $400 of her own money to be sure no parent goes without a memory box. But the expenses were getting too great, and Rebecca reached out to the OC Walk to Remember for help.

When I heard that Erin went home with a make-shift memory box and that others have had to do the same, it broke my heart. Although the OC Walk to Remember donates thousands of dollars to local hospitals, it often isn’t enough to provide the Labor and Delivery and NICU units with everything they need to help parents grieving the loss of a baby. But thanks to a donation from West Coast Detox and Ecology Tire made in memory of Aiden Kenneth Bailey, the OC Walk to Remember was able to provide Erin and Rebecca with 200 more boxes. They have committed to decorating and distributing these boxes into Orange County hospitals, as well as Long Beach Memorial Hospital.

Memory boxes moms receive after the death of their baby are invaluable. I think Erin explained it best when she told me her box “holds some of the most precious items I own.”

I am so thankful to Rebbeca Wright and Erin Brinkerhoff for their efforts in making sure no mom leaves the hospital without a beautiful memory box. I am also thankful to Angie Bailey for arranging the donation to make sure the boxes were purchased.

If you would like to make a donation to help purchase memory boxes, please contact me at kvonrotz@ocwalktoremember.org.

Thank you.

Kristyn von Rotz, Cofounder and Executive Director

Participate in OC Walk to Remember’s Survey

Greetings!

The OC walk to Remember strives to be an organization that helps parents who have had a pregnancy or infant loss, and the following survey will help us improve.  Some of these questions questions are sensitive in nature, and we thank you in advance for sharing with us.  The survey can be submitted no matter how many questions you answer, so please feel free to answer only those that you are comfortable with.  The survey is confidential, and your personal answers will not be shared.

Thank you so much,

Kristyn von Rotz, Cofounder and Executive Director

Take this survey

Each Life is a Gift:CHOC Children’s Bereavement Support Groups

CHOC Children’s Bereavement support groups for CHOC Families who have lost a child.

Adults English & Spanish

Group Topics:

January- Taking Care of YOU

February- Dealing with Feelings of Guilt

March-Knowing When to Ask for Help

April-Finding Purpose in Life

May- Identifying your Support System

June- Helping Children Grieve

July- Facing Difficult Memories (2nd Wednesday of July due to 4th of July Holiday)

August- Ways to Remember

September- Sharing with Others

October- Coping with Anniversaries

November-Memorial Service

December- Surviving the Holidays

FIRST WEDNESDAY OF EVERY MONTH

Nightly Schedule:

6:00-6:30-Family Dinner (Provided by CHOC)

6:30 – 7:30-Groups

Information Line: 714. 532. 8521

455 S. Main Street

Orange, CA 92868

2nd Floor of CHOC, West Clinic Building(check directory/ signs for exact room)

SAVE THE DATE and Message from Kristyn von Rotz

2012 OC Walk to Remember Remembrance Ceremony, 5K Walk, and Memorial Celebration
Saturday, October 6
The District at Tustin Legacy
(More information to come soon!)

As 2011 comes to a close, I am grateful that for another year the OC Walk to Remember was able help parents who have lost a baby in pregnancy or infancy. This year, we were able to support all hospitals in Orange County with a with a labor and delivery unit and all Orange County support groups that help parents grieving the loss of a baby. In addition, we were able to hold the OC Walk to Remember 5K Walk and Memorial Service for 1900 participants.
As 2012 begins, I look forward to raising even more funds to support parents, hospitals and support groups. I hope for the first time ever, we can hit (and surpass!) our goal of raising $50,000. I hope that the OC Walk to Remember will be able to say “yes!” to every request that comes to us requesting financial help to continue supporting parents in their grieving process. And most importantly, in 2012, we will distribute 10,000 brochures into the community, in hopes that every parent who has lost a baby knows there is support out there for them.
If you are a parent who has lost a baby, I wish you peace in this New Year. Please know your baby will never be forgotten. There is a quote that is very special to me, and I’d like to share it with you.

Sometimes love is for a moment
Sometimes love is for a lifetime
Sometimes a moment is a lifetime

Treasure the special moments you have made in 2011, whether they were for a moment or a lifetime.

Sincerely,
Kristyn von Rotz
Cofounder and Executive Director

Another Year Without You…

This is the 3rd Chirstmas without my son, Kadan.  When the holidays come around, I have a routine of decorating with lots of toys at the cemetery.  I miss him so much and this is just a way of expressing how much I love him.  I also got him an annual ornament and set up his special Christmas tree.

Today, it’s Christmas Day and it’s tough! But, I know I carry him with me in my heart forever.I love you Kadan.

If you have a story you would like to share, please email me @kfuruta@ocwalktoremember.org

Kadan’s Christmas Tree

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More upcoming news here on the OC Walk to Remember Blog!

Happy Holidays!

Holidays – especially for newly bereaved parents – are not what they used to be. In years past you may have busied yourself with shopping, baking and other forms of merriment. But after the loss of your baby, what others experience as the joy of the holidays can seem like a cruel nightmare to you. The festivities are proof that everyone else is “going on with their lives” as if nothing has happened. But something has happened – your baby has died.

It is important to remember that the first holiday after the death of your baby is almost always the most intense and difficult. You are probably still experiencing a form of numbness. But as you actively work through your grief, the sharp intensity lessens slightly, and you are slowly able to allow more joyful moments in.

The following are some ideas that other parents have found useful in getting through the holidays:

-Prioritize what is most important. You probably have a limited amount of energy right now. That energy should be saved for only the most precious of tasks (like time with your spouse or other children). It is not only OK to say “No”, it is crucial to your wellbeing.

-Lower your expectations. Do only the things that bring you comfort – attending only small gatherings, not decorating your house, making this year a “no-present” year. This is the time to do things that feel “selfish” in order to take care of you. Remember – this is a period of time in your life like none other. You will not always need to pull back on things you regularly do, but this year you might.

-Set limits and create “escape plans”. It is OK to turn down invitations to festive events. But you may want to spend some time – even if it is limited – with loved ones. If you go to a party, agree that you can leave after a very short period of time – and try not to feel guilty when you do leave early.

-What you do this holiday is what you do this year. Next year will be different. You will feel different, and your needs will be different. It’s OK to make your own rules, and then change them.

-Ask for and ACCEPT help and support. If you must shop, can others help? Can you shop online?

-Set aside time every day to actively grieve. Take out mementos of your baby, music that is meaningful to you – and allow yourself to FEEL. Cry, scream, write, draw. And then, at the end of your time, put your baby’s things away and re-engage in your life. Just show up as much as you are able. Do it again tomorrow.

-Allow your faith and your faith community to comfort you. Many bereaved parents experience periods where they feel angry with God. It is OK to feel angry with God, but still participate in the parts of your faith that give you solace. Is there a Women’s Group or a Men’s Group that has been helpful in the past? Do you enjoy the hymns normally sung at Christmas services? It’s OK to enjoy those aspects and still feel angry and confused.

Please remember that you are not alone. You will get through this.

By Laura Navarro Pickens, LCSW. Laura is a psychotherapist in Newport Beach who specializes in perinatal and infant loss. She is a consultant for the Kendall Lauren Honig Perinatal Loss Program at Hoag Hospital, where she facilitates a weekly support group for bereaved parents. She also provides psychotherapy for individuals and couples who have experienced the loss of a child or other reproductive trauma. You can contact her at www.TherapistLaura.com or at (562) 882-7901.
Soon our 2011 fundraising campaign will come to a close, and I would like to reach out to you and let you know how critical donations are to the OC Walk to Remember. Not only do the donations benefit local hospitals and support groups, but they also help our organization support parents who have lost a baby in pregnancy and infancy. And most importantly, the donations help us put on the annual OC Walk to Remember 5K Walk and Memorial Service.

A Season Of Giving
To make a donation to the OC Walk to Remember this holiday season, click here. Your donation will directly help impact families grieving the loss of a baby or babies.

The OC Walk to Remember is a 501(c)(3) nonprofit organization founded in 2004 that supports parents who have lost a baby in pregnancy or infancy. The mission of the OC Walk to Remember is to raise money for local organizations that support parents who have experienced miscarriage, pregnancy loss, or infant loss of any kind, as well as be a resource center for parents, doctors, nurses, hospitals, support groups, and anyone in need of support or information.



I wish you a peaceful holiday season. My thoughts are with each and every one of you. If you are in need of support, please visit our website or contact us at info@ocwalktoremember.org.

Sincerely,

Kristyn von Rotz

Cofounder and Executive Director

800-714-9320

www.ocwalktoremember.org

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More stories here soon!

Brandon Ty Garner

“Thank you for the event, the ceremony was beautiful. We lost our Brandon on July 1st due to PPROM at 24 weeks. His due date was suppose to be on October 17. So the walk helped ease some of the pain. “

-Janet Garner


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